Beandri Booysen: Girl In South Africa With Progeria Dies

Beandri Booysen, a teenage girl who radiated an undeniable “hope and joy” for life despite suffering from an extremely rare aging disease, passed away just days before Christmas. She was 19 years old.

Diagnosed at seven months old with Progeria — also known as Hutchinson-Gilford progeria syndrome — Beandri was not expected to live past the age of 14, as her condition forced her to age eight times faster than the average human.

But in her nearly two decades of life, her heartwarming content on social media inspired thousands of viewers online.

Image credits: Bea Booysen

On Wednesday, December 18, her mother, Bea Booysene, confirmed the news on her daughter’s Facebook page titled “In Loving Memory of Beandri Booysen.”

“It is with deep sadness that we announce the passing of Beandri Booysen, one of South Africa’s most beloved and inspirational young women,” Bea wrote in a text now translated into English.

“Beandri was not only known for her vibrant personality and infectious laugh, but was also the last surviving person in South Africa to live with Progeria.”

Image credits: Bea Booysen

She continued, “She was a voice and a symbol of awareness for Progeria and other special needs, and inspired thousands with her unique spirit. She never stopped fighting.”

While a memorial service is yet to be announced, her family has requested privacy during this “extremely difficult time.”

Beandri’s presence on social media was undeniable, as she used her platform to “raise awareness”

Image credits: Bea Booysen

From the beginning, Beandri’s motto was simple: “Be yourself. Love yourself. Believe in yourself.”

The 19-year-old was determined to show exactly that on TikTok, where she had nearly 300,000 followers, with many of her videos garnering hundreds of thousands of views.

Image credits: Bea Booysen

In an interview earlier this year, Beandri spoke about how she wished to use social media as a way to “inspire” and “motivate” her audience, sharing tips on how to adapt her positive mindset.

“I face everything that God brings into my life and I credit my family for my strength and support by raising me as a ‘normal’ child and not one to be seen as different to others,” she said.

Image credits: Bea Booysen

Her hope was to highlight “other special needs individuals and show that everyone is different and unique in their own way and to give strength” in any way she could.

According to the Daily Mail, Beandri only weighed 12kg. Despite this setback, she still attended school and had big dreams of settling down and having kids at 25 years old — before hopefully landing a job as a teacher.

Beandri was determined to spread positivity, despite her limiting disease

Image credits: Bea Booysen

The odds of having a child with progeria are 1 in 4 million, as per the Cleveland Clinic. This means only 400 young adults and children in the world currently suffer from the disease.

Symptoms start to show within a toddler’s first two years of life which include—but are not limited to—wrinkled skin, growth failure, balding, and loss of body fat.

Image credits: Bea Booysen

The average life expectancy hovers at around 14-15 years old. Some may die younger while others can live to see their second decade of life.

While there is currently no cure for progeria, researchers are actively studying various drugs in order to treat this condition.

Netizens offered their condolences and reflected on her continuously optimistic outlook

Related Posts

Little girl’s dirty answer forces teacher to golden comeback

When Mrs. Parks asked her sixth-grade science class a seemingly simple question, no one could have predicted the hilarious misunderstanding that would unfold. What started as an…

Court Rules US Can Deport Illegals Despite Objections In Win For Incoming Trump Admin

A federal appeals court said that U.S. Immigration and Customs Enforcement (ICE) can keep using a Seattle airport for chartered deportation flights, which is positive news for…

Prayers are needed for Kurt Russell. What happened to him is terrible…

Kurt Vogel Russell is an American actor. At the age of twelve, he made his screen debut in a western series. Russell’s portrayal in Mike Nichol’s Silkwood…

Thinks He Can Get Away With Spitting In A Marine’s Face, Learns a Hard Lesson

Disagreeing with government policies is one thing, but disrespecting the individuals who defend our nation is another. Yet, one liberal activist learned this lesson the hard way….

A Coma, A Revelation, and the Strength of Family Bonds

The relationship between my wife, Leah, and my dad was never smooth. Despite years of disagreements, when my dad fell into a coma, Leah was unwavering in…

Decades-Old Missing Plane Found—What They Discovered Inside Will Leave You Terrified 😱 See the shocking photos in the first comment

Alaska’s Lost Jet: A Mystery Unveiled The Letter That Started It All Philip, a remote Alaskan researcher, received an anonymous letter about Flight 66, a plane that…

Leave a Reply

Your email address will not be published. Required fields are marked *